Empowering the GM2 Gangliosidosis community: Developing a clinical toolkit for clinicians, patients, and caregivers in the UK
This poster was presented at the WORLDSymposium 2024 by Dan Lewi of The CATS Foundation . It represents a clinical toolkit for those affected by Tay-Sachs and Sandhoff, providing essential resources and support. The toolkit was co-created by The CATS Foundation and Cognitant, with collaboration from clinicians, patients, and caregivers throughout the design process.
By equipping healthcare professionals with valuable insights and tools, the toolkit aims to enhance patient care and support networks, improving the quality of life for individuals living with these diseases.
Reference the publication
WORLDSymposium™ does not publish the full-text of the abstracts online; the full-text is available only from Elsevier for accepted abstracts submitted which are then published in the February 2024 special “Lysosomes Issue” of Molecular Genetics and Metabolism (MGM). The reference for the poster publication is below.
Lewi, D., Durao, P., Stokes, L., MacKillop, I., & Wiltshire, M. (2024). Empowering the GM2 gangliosidosis community: Developing a single clinical toolkit for clinicians, patients and caregivers in the UK. Molecular Genetics and Metabolism, 141(2), 107938. https://doi.org/10.1016/j.ymgme.2023.107938
Cognitant
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